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Jamal's Helping Hands will be hosting an online event focusing on how to navigate rare illnesses during the COVID-19 pandemic. Over three days, from September 15th to 17th, "Navigating RARE During a Pandemic" will include talks from experts and testimonials from parents of children with a rare disease.Jamal's Helping Hands is a client-focused support service, helping patients and their families to deal with chronic illness and rare diseases. Their services include healthcare coaches, support groups, and educational workshops. The organization is the recipient of the Walmart Community Grant Team and Facility in support of the JHH Rare Disease Support Group. The nonprofit organization is holding the online event for free, with optional VIP donor tickets available for $30. Donors can also make a contribution without purchasing a ticket.
The event is designed to provide help and support to give patients and families the tools that they need to navigate the challenges created by a pandemic. Living with a rare disease or chronic illness is already challenging, but becomes even more so when faced with a complicating factor such as a highly-contagious virus.
Speaker topics for the three-day event include:
- How genetic testing and getting a genetic diagnosis is of value to rare disease patients
- Optimizing your health through proper self-care during the pandemic and beyond
- Achieving access to Quality Medical Care
- Patient engagement: the importance of connecting to your community
Speakers include host and founder of Jamal's Helping Hands, Valeria McConnell, Dr. Marjorie Dejoie Brewer, owner of MAD Fit, and Sara Franklin, Executive Director of the Epilepsy Foundation of Alabama. The event will also offer the chance to hear from parents who have experienced having a child with a rare disease. Attendees will be able to receive plenty of useful information and the support that they need to feel able to navigate the challenge of the pandemic.
Businesses and supporters have the additional opportunity to sponsor the event, with four sponsorship tiers available. Sponsors can benefit from their name, logo, and brand included in pre-event marketing, branding, and post-event marketing to varying levels. Sponsorship amounts begin at $500, with perks such as the sponsor's logo on the event website and on the virtual platform, as well as inclusion in both pre-event and post-event marketing and email materials. The top sponsorship level includes promotion on social media networks and the sponsor's logo included on a T-shirt.
Partners for the event include HudsonAlpha, Sickle Cell Disease Association of America, Epilepsy Foundation Alabama, the University of Alabama at Birmingham, and the E. WE Foundation.
Find out more about Jamal's Helping Hands on the organization's website at https://jamalshelpinghands.org/. For more information, please contact Ms. Valeria McConnell, Executive Director Jamal's Helping Hands, Inc. Call 256-669-0325, email vmcconnell@jamalshelpinghands.org or write to P.O. Box 554, Madison, AL 35758.
Contact Info:
Name: Ms. Valeria McConnell
Email: Send Email
Organization: Jamal's Helping Hands
Address: P.O. Box 554, Madison, AL 35758
Phone: 256-669-0325
Website: https://jamalshelpinghands.org/
Release ID: 88975423