International Research Shows That Caregivers Experience Fragmentations On The Healthcare System More Than Patients Do

For decades, caregivers have always been on the receiving end of any unfavorable issues in the health care system services. This study shows healthcare providers are adequate, but improvements are needed in the healthcare system itself, to reduce cost and eliminate fragmentation

Hierden, Gelderland: Healthcare providers experience care as more fragmented than patients, while patients are more critical about their personal experience. This is one of the most important findings from the research published in the scientific journal Plos One.

Essenburgh Research & Consultancy announces their study in collaboration with Diaverum and the University of Maastricht. The research focuses on what patients and caregivers think good and coherent care looks like.

The results of this research, conducted in 19 countries around the world, provide essential insights into how to develop an integrated care system based on patients' and caregivers' needs.

International scientific research about patient experience with collaboration between healthcare providers of this scale had never been carried out before. Using a survey study, and the participation of 30,788 Chronic Kidney Disease (CKD) patients, it was investigated how nearly 9,000 different care providers work together.

Care providers were also surveyed on the degree of cooperation and the quality of care. This research provides a detailed overview of the barriers that patients experience regarding collaboration and coordination of care between providers.

The results showed that patients are less critical about the degree and quality of collaboration, but their interest lies in the quality of care providers themselves, as well as on how they are treated (i.e. their personal experience with the provider). At the same time, providers believe already that their approach to patients is adequate. These results were consistent throughout all 19 countries surveyed.
As for next steps, principal investigator Dr. Pim Valentijn explains: "care providers involved in the research received the results back, thanks to an interactive online dashboard. With this information, they have concrete tools for enhancing mutual cooperation. That way we can actually improve something for the patients".

Since the questionnaire is now available and tested in 16 different languages, it is also possible to compare the experience of patients and caregivers between different countries.

Cooperation between healthcare providers and organizations is often faulty in practice. This leads to highly fragmented care for patients, especially those with complex diseases such as chronic conditions, such as CKD. One consequence for such patients, for example, is they often end up performing the same treatments and diagnostic test twice.

This leads to unnecessary costs, double treatments and overall negative experience for the patient. The results of this research can be used to develop an integrated care system that is tailored to the patients' actual needs. As this study shows, the differences in perception between patients and caregivers make the patients' input absolutely vital in this process.

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Contact Info:
Name: Dr. Pim Valentijn
Email: Send Email
Organization: Essenburgh Research & Consultancy
Phone: +31 341 217101

Release ID: 88922356